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Stories
September 12, 2017

Paul and Scars

Paul had a bunch of scars. His back from his closure. Big like a horizontal zipper. His head and chest and stomach from shunt revisions. The front of his neck from his tracheotomy, a little hole by his voice box.…
Stories
September 9, 2017

Paul’s Last Night

Paul’s last night, for some reason I got up twice, just to check on him. It’s not like I never did that, but it was rare. Never twice in one night. I left for work in the morning after saying…
Stories
September 1, 2017

Paul and Us

Paul strengthened our marriage.  Our experience is that there are only two types of marriages when you have a handicapped kiddo – strong as iron, or divorced.  We know plenty of both.  Either you figure out how to make decisions…
Stories
August 31, 2017

Paul and Strength

Paul was not always super ambitious. There were a lot of times he just wanted to sit on the couch watching TeenNick, Hannah Montana, or iCarly. He would sit on the couch with some electronic device and the TV on…
Stories
August 28, 2017

Paul and Pity

Thank you to everyone who helped and attended Paul’s celebration yesterday. Kathie and I were very grateful that people “got it” and talked about the remarkable things Paul did during his life, and that the pity party was nowhere to…
Stories
August 25, 2017

Paul and Comfort

Kathie and I are talking a lot to figure out what happened. I have had some difficult days this week, now that time has slowed a little, thinking about all the things we will not be doing with Paul. Talking…
Stories
August 23, 2017

Paul and Grief

Writing helps me sort out the grief from the loss of Paul. I am not the first person to suffer a tough personal loss, but I am learning a lot about pain and I want to filter through it in…